Genetic Security Research Library

Read for the question you need to answer

Start with the claim you are investigating. If the question concerns a service's access rules, read its dated policy documentation. If it concerns an analytical capability, look for the method, evaluation conditions, and limitations. If it concerns an incident, prioritize records that describe the actual affected assets and access.

These sources may complement one another without being interchangeable. A method paper can explain why an inference is possible but cannot prove that someone made that inference during a particular breach. Keep a short note of what each source establishes and where the remaining gap lies. That makes the eventual case summary easier to write accurately.

Sources

PRIMARY SOURCE NIST: Genomic Data Threat Modeling
PRIMARY SOURCE U.S. DOJ Data Security Program
PRIMARY SOURCE NIH: HeLa whole-genome data guidance, 2013
PRIMARY SOURCE 23andMe quarterly SEC disclosure, December 2023
PRIMARY SOURCE GEDmatch privacy and security documentation
PRIMARY SOURCE NIJ: What can DNA phenotyping tell us?
PRIMARY SOURCE USDA ARS: Plant Genetic Resources, Genomics and Genetic Improvement
PRIMARY SOURCE Heather Dewey-Hagborg: Stranger Visions
SECONDARY SOURCE NHPR / NPR: Turning found DNA into portraits, 2013
SECONDARY SOURCE Havasupai research-consent analysis
BACKGROUND SOURCE ASU repository: Havasupai research ethics resource
PRIMARY SOURCE NHGRI: Investigative genomics
PRIMARY SOURCE Guerrini et al.: Police access to genetic genealogy databases
PRIMARY SOURCE SAM/BAM, CRAM, and VCF format specifications
BACKGROUND SOURCE NHGRI Talking Glossary of Genomic and Genetic Terms
PRIMARY SOURCE ftc.gov — 1Health / Vitagene FTC Enforcement source 1
PRIMARY SOURCE ftc.gov — 1Health / Vitagene FTC Enforcement source 2
PRIMARY SOURCE verogen.com — GEDmatch 2020 Permissions Breach source 1
PRIMARY SOURCE gedmatch.com — GEDmatch 2020 Permissions Breach source 2
PRIMARY SOURCE blog.myheritage.com — MyHeritage 2018 Breach: A Negative Control source 1
PRIMARY SOURCE Court opinion — Moore v. Regents Of The University Of California
PRIMARY SOURCE pubmed.ncbi.nlm.nih.gov — Moore v. Regents Of The University Of California source 2
PRIMARY SOURCE Court opinion — Washington University v. Catalona
PRIMARY SOURCE pubmed.ncbi.nlm.nih.gov — Greenberg v. Miami Children's Hospital source 1
PRIMARY SOURCE Court opinion — Greenberg v. Miami Children's Hospital
PRIMARY SOURCE dshs.texas.gov — Texas Newborn Blood Spots source 1
PRIMARY SOURCE pmc.ncbi.nlm.nih.gov — Texas Newborn Blood Spots source 2
PRIMARY SOURCE nature.com — Kennewick Man / The Ancient One source 1
PRIMARY SOURCE pubmed.ncbi.nlm.nih.gov — Kennewick Man / The Ancient One source 2
PRIMARY SOURCE doi.org — Chaco Canyon Ancient DNA source 1
PRIMARY SOURCE doi.org — Chaco Canyon Ancient DNA source 2
PRIMARY SOURCE igb.illinois.edu — Nuu-Chah-Nulth Blood-Sample Return source 1
PRIMARY SOURCE gida-global.org — Nuu-Chah-Nulth Blood-Sample Return source 2
PRIMARY SOURCE pubmed.ncbi.nlm.nih.gov — Icelandic Population Imputation source 1
PRIMARY SOURCE genome.gov — Icelandic Population Imputation source 2
PRIMARY SOURCE doi.org — Homer Et Al. And Aggregate GWAS Data source 1
PRIMARY SOURCE grants.nih.gov — Homer Et Al. And Aggregate GWAS Data source 2
PRIMARY SOURCE pubmed.ncbi.nlm.nih.gov — Gymrek Surname Inference source 1
PRIMARY SOURCE doi.org — Gymrek Surname Inference source 2
PRIMARY SOURCE pubmed.ncbi.nlm.nih.gov — James Watson's Redacted APOE Region source 1
PRIMARY SOURCE pmc.ncbi.nlm.nih.gov — James Watson's Redacted APOE Region source 2
PRIMARY SOURCE doi.org — Genomic Beacon Re-Identification source 1
PRIMARY SOURCE ga4gh.org — Genomic Beacon Re-Identification source 2
PRIMARY SOURCE personalgenomes.org — Personal Genome Project Open Consent source 1
PRIMARY SOURCE arxiv.org — Personal Genome Project Open Consent source 2
PRIMARY SOURCE Court opinion — S. And Marper v. United Kingdom
PRIMARY SOURCE Court opinion — Maryland v. King
PRIMARY SOURCE Court opinion — Maryland v. King
PRIMARY SOURCE hrw.org — Kuwait's Universal DNA Law source 1
PRIMARY SOURCE familytreedna.com — FamilyTreeDNA And FBI Matching source 1
SECONDARY SOURCE fpf.org — FamilyTreeDNA And FBI Matching source 2
PRIMARY SOURCE dnadoeproject.org — Buckskin Girl / Marcia King source 1
PRIMARY SOURCE doj.nh.gov — Bear Brook Identifications source 1
PRIMARY SOURCE innocenceproject.org — Angie Dodge / Christopher Tapp source 1
PRIMARY SOURCE idahofallsidaho.gov — Angie Dodge / Christopher Tapp source 2
PRIMARY SOURCE iso.org — The Phantom Of Heilbronn source 1
PRIMARY SOURCE doi.org — The Phantom Of Heilbronn source 2
PRIMARY SOURCE gov.uk — Adam Scott / LGC Forensics Contamination source 1
SECONDARY SOURCE wired.com — Lukis Anderson And Secondary DNA Transfer source 1
PRIMARY SOURCE eeoc.gov — Burlington Northern Santa Fe Genetic Testing source 1
PRIMARY SOURCE genome.gov — Burlington Northern Santa Fe Genetic Testing source 2
PRIMARY SOURCE Court opinion — Lowe v. Atlas Logistics
PRIMARY SOURCE eeoc.gov — Fabricut And The First EEOC GINA Settlement source 1
PRIMARY SOURCE pubmed.ncbi.nlm.nih.gov — Norman-Bloodsaw v. Lawrence Berkeley Laboratory source 1
PRIMARY SOURCE biotech.law.lsu.edu — Norman-Bloodsaw v. Lawrence Berkeley Laboratory source 2
PRIMARY SOURCE pmc.ncbi.nlm.nih.gov — The He Jiankui CRISPR-Baby Experiment source 1
PRIMARY SOURCE who.int — The He Jiankui CRISPR-Baby Experiment source 2
SECONDARY SOURCE pmc.ncbi.nlm.nih.gov — Donald Cline Fertility Fraud source 1
PRIMARY SOURCE iga.in.gov — Donald Cline Fertility Fraud source 2
SECONDARY SOURCE pmc.ncbi.nlm.nih.gov — Jan Karbaat And The Dutch Donor Registry Failure source 1
PRIMARY SOURCE courtlistener.com — CHA Fertility Center Embryo Mix-Up source 1
PRIMARY SOURCE cisa.gov — Illumina Local Run Manager Vulnerabilities source 1
PRIMARY SOURCE support.illumina.com — Illumina Local Run Manager Vulnerabilities source 2
PRIMARY SOURCE fda.gov — Illumina Universal Copy Service Vulnerability source 1
PRIMARY SOURCE cisa.gov — Illumina Universal Copy Service Vulnerability source 2
PRIMARY SOURCE usenix.org — DNA-Encoded Malware Proof Of Concept source 1
PRIMARY SOURCE dnasec.cs.washington.edu — DNA-Encoded Malware Proof Of Concept source 2
PRIMARY SOURCE oag.ca.gov — Ambry Genetics Email-Account Breach source 1
PRIMARY SOURCE ohioattorneygeneral.gov — DNA Diagnostics Center 2021 Breach source 1
SECONDARY SOURCE techcrunch.com — Veritas Genetics Portal Incident source 1
PRIMARY SOURCE oag.dc.gov — 23andMe Bankruptcy And Data Stewardship source 1
PRIMARY SOURCE attorneygeneral.gov — 23andMe Bankruptcy And Data Stewardship source 2
PRIMARY SOURCE restructuring.ra.kroll.com — 23andMe Bankruptcy And Data Stewardship source 3
PRIMARY SOURCE gisaid.org — GISAID Access And Pandemic-Data Governance source 1
SECONDARY SOURCE science.org — GISAID Access And Pandemic-Data Governance source 2
PRIMARY SOURCE doi.org — Deleted Early SARS-CoV-2 Sequences source 1
PRIMARY SOURCE ncbi.nlm.nih.gov — Deleted Early SARS-CoV-2 Sequences source 2
PRIMARY SOURCE osp.od.nih.gov — H5N1 Transmissibility Research And Publication source 1
PRIMARY SOURCE nih.gov — H5N1 Transmissibility Research And Publication source 2
PRIMARY SOURCE croptrust.org — Svalbard Seed Vault Water Intrusion source 1
PRIMARY SOURCE seedvault.no — Svalbard Seed Vault Water Intrusion source 2
PRIMARY SOURCE icarda.org — ICARDA Aleppo And The First Svalbard Withdrawal source 1
PRIMARY SOURCE croptrust.org — ICARDA Aleppo And The First Svalbard Withdrawal source 2
SECONDARY SOURCE sciencehistory.org — The Vavilov Collection During The Siege Of Leningrad source 1
PRIMARY SOURCE esa.org — Pavlovsk Experiment Station Development Threat source 1
PRIMARY SOURCE cgspace.cgiar.org — The Enola Bean Patent source 1
PRIMARY SOURCE patents.google.com — The Enola Bean Patent source 2
PRIMARY SOURCE Court opinion — Bowman v. Monsanto
PRIMARY SOURCE wipo.int — Bowman v. Monsanto source 2
PRIMARY SOURCE Court opinion — Association For Molecular Pathology v. Myriad
PRIMARY SOURCE fao.org — Cavendish Bananas And Tropical Race 4 source 1
PRIMARY SOURCE fao.org — Cavendish Bananas And Tropical Race 4 source 2
PRIMARY SOURCE evolution.berkeley.edu — The Irish Potato Famine And Crop Uniformity source 1
PRIMARY SOURCE pmc.ncbi.nlm.nih.gov — The Irish Potato Famine And Crop Uniformity source 2
PRIMARY SOURCE cbd.int — Digital Sequence Information And The Cali Fund source 1
PRIMARY SOURCE un.org — Digital Sequence Information And The Cali Fund source 2
PRIMARY SOURCE hrw.org — Mass DNA Collection In Xinjiang And Tibet source 1
PRIMARY SOURCE hrw.org — Mass DNA Collection In Xinjiang And Tibet source 2
PRIMARY SOURCE hrw.org — Mass DNA Collection In Xinjiang And Tibet source 3
PRIMARY SOURCE NHGRI: Polygenic Risk Score
PRIMARY SOURCE NHGRI: Informed Consent
PRIMARY SOURCE NIST SP 800-188: De-identification
PRIMARY SOURCE GA4GH: Data Use Ontology
PRIMARY SOURCE NIST: Chain of custody
PRIMARY SOURCE NIJ: DNA Evidence — Basics of Analyzing
PRIMARY SOURCE NCI: Whole genome sequencing
PRIMARY SOURCE NIST: Access control
PRIMARY SOURCE NIST: Least privilege
PRIMARY SOURCE NIST: Multi-factor authentication
PRIMARY SOURCE NIST: Encryption
PRIMARY SOURCE NIST: Audit trail
PRIMARY SOURCE NIST: Checksum
PRIMARY SOURCE CISA: StopRansomware Guide
PRIMARY SOURCE FAO: Genebank Standards for Plant Genetic Resources
PRIMARY SOURCE CDC: Advanced Molecular Detection

How sources are used

Source and citation policy